Storm the Heavens Fund

Spreading awareness and funding desperately needed research in order to create a world where 0% survival is a thing of the past.
We must do better!

DIPG has a 0% survival rate

Diffuse Intrinsic Pontine Glioma (DIPG) is a uniformly fatal form of brain cancer that affects mostly children under the age of 11.

Children diagnosed with DIPG today receive the same standard treatments options that astronaut Neil Armstrong’s 2-year-old daughter, Karen, received in 1962.

We must do better!

Our Inspiration

Philomena was an absolutely perfect, 7-year-old little girl who was diagnosed with DIPG on September 15, 2016. Philomena touched the hearts of everyone she met. Tragically, she lost her battle to this uniformly fatal disease just 10 months later on July 23, 2017.

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To date, Storm the Heavens Fund has granted $744,000 to fund DIPG clinical trials and research with the help of donors like you.
Join our faithful community to spread awareness about DIPG and fund life-changing research. We believe that, with your help, we can fund a cure that will give every child with DIPG the chance to live a full life.

Join Our Community

In Bean’s honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research. We believe, with your help, we can fund a cure that will give every child diagnosed with DIPG the chance to live a full, healthy life. Every child has the right to grow up to be an adult.

Bean's "Beach" Ball

July 10, 2021 12:00 pm

Bean’s “Beach” Ball. Presented by Storm The Heavens Fund. All proceeds fund desperately needed research. To learn more about our research projects click here.