Put an end to DIPG through prayer, research & awareness.
What is DIPG?
Diffuse Intrinsic Pontine Glioma (DIPG) is a uniformly fatal form of brain cancer that affects mostly children under the age of 11.
Facts about DIPG
0% survival rate
300-400 children are diagnosed with DIPG every year in the United States.
Median survival is just ten months after diagnosis.
DIPG takes away the ability to walk, talk, smile, and eventually to breathe. All while leaving the mind completely intact.
The leading cause of brain tumor death in children
In 1962, American astronaut Neil Armstrong’s 2-year-old daughter, Karen, died from DIPG. Nothing has changed in the treatment options or survival rate for this disease in the almost 60 years since her death.
DIPG is terminal upon diagnosis.
Radiation is a palliative treatment that does not change the outcome.
We must do better!
Only 4% of our federal cancer funding budget goes to childhood cancers. Most of the funding goes to more popular cancers, leaving DIPG with next to nothing.
In Bean’s honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research. We believe, with your help, we can fund a cure that will give every child diagnosed with DIPG the chance to live a full, healthy life. Every child has the right to grow up to be an adult.