Our Impact
Storm the Heavens Fund is a community dedicated to creating a world where no child dies from DIPG.
To date, Storm the Heavens Fund has donated $1,066,588 to fund DIPG clinical trials and research.
Funded Research Projects
-
Diffuse Midline Glioma-Adaptive Clinical Trial
Storm the Heavens Fund has committed $400,000 to support the Diffuse Midline Glioma-Adaptive Clinical Trial (DMG-ACT).
-
The DIPG Collaborative
During our time as a Foundational Partner with the DIPG Collaborative, Storm The Heavens Fund contributed a total of $87,000.
-
The Philomena DIPG Research Initiative Project
Storm the Heavens has funded the Philomena DIPG Research Initiative Project in its entirety by granting $322,000 to Dr. Charles Keller at the Children’s Cancer Therapy Development Institute. -
Alex’s Lemonade Stand Foundation
Storm the Heavens Fund donated $25,000 to Alex’s Lemonade Stand Foundation to fund a grant for a DIPG research project at the University of Michigan. -
Stanford Car-T Cell Trial
Storm the Heavens has been working to bring a cure to DIPG since Philomena’s diagnosis in 2016. In 2021, Storm The Heavens Fund contributed $125,000 to help fund an Nurse Practitioner position in the Stanford Car-T cell trial. This position enabled access to expand the trial to more patients.
-
DIPG/DMG Research Funding Alliance
Storm the Heavens Fund proudly invested in the DIPG/DMG Research Funding Alliance (DDRFA) as a founding member.
Projects Needing Funding
Stanford Car-T Cell Trial
Storm the Heavens has been working to bring a cure to DIPG since Philomena’s diagnosis in 2016. Never have we been as inspired by the success of a trial as we are with the Stanford University Car T Cell trial.
Additional Research
In 2020, Storm the Heavens Fund donated $10,000 to Oncoceutics, a clinical-stage drug discovery and development company. The donation was to assist in funding an Expanded Access program for ONC201 in the United States. To date, Storm the Heavens Fund has contributed an additional $47,500 to various other foundations and institutions.
Join Our Community
Storm the Heavens Fund is a faithful community committed
to spreading awareness and funding research in order
to create a world in which no child dies from DIPG.
Contact
Storm the Heavens Fund
2424 York Street. Unit 327
Philadelphia, PA 19125
Tax ID: 82-2521813
Storm the Heavens Fund is a faithful community committed to spreading awareness and funding research in order to create a world in which no child dies from DIPG.
Powered by Liam Barnes