Our Impact
Storm the Heavens Fund is a community dedicated to creating a world where no child dies from DIPG.
There is no cause greater than the fight for our Children’s right to grow up to be adults.
There is no cause greater than the fight for our Children’s right to grow up to be adults.
Funded Research Projects
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Diffuse Midline Glioma-Adaptive Clinical Trial
Storm the Heavens Fund has committed $300,000 to support the Diffuse Midline Glioma-Adaptive Clinical Trial (DMG-ACT). -
The DIPG Collaborative
Storm the Heavens is a Foundational Partner in the DIPG Collaborative, contributing $87,000 to date with a minimum annual contribution of $25,000. -
The Philomena DIPG Research Initiative Project
Storm the Heavens has funded the Philomena DIPG Research Initiative Project in its entirety by granting $322,000 to Dr. Charles Keller at the Children’s Cancer Therapy Development Institute. -
Alex’s Lemonade Stand Foundation
Storm the Heavens Fund donated $25,000 to Alex’s Lemonade Stand Foundation to fund a grant for a DIPG research project at the University of Michigan. -
Stanford Car-T Cell Trial
Storm the Heavens has been working to bring a cure to DIPG since Philomena’s diagnosis in 2016. Never have we been as inspired by the success of a trial as we are with the Stanford University Car T Cell trial.
Projects Needing Funding
Stanford Car-T Cell Trial
Storm the Heavens has been working to bring a cure to DIPG since Philomena’s diagnosis in 2016. Never have we been as inspired by the success of a trial as we are with the Stanford University Car T Cell trial.
Additional Research
In 2020, Storm the Heavens Fund donated $10,000 to Oncoceutics, a clinical-stage drug discovery and development company. The donation was to assist in funding an Expanded Access program for ONC201 in the United States.
Legislation
Bipartisan Legislation Seeks to Enhance Funding for Pediatric Cancer Research
Fitzpatrick, Gottheimer, Stefanik, Murphy, Kelly, Kim, Herrera Beutler, Evans Introduce Fairness to Kids with Cancer Act
Join Our Community
In Bean’s honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research. We believe, with your help, we can fund a cure that will give every child diagnosed with DIPG the chance to live a full, healthy life. Every child has the right to grow up to be an adult.
Contact
Storm the Heavens Fund
2424 York Street. Unit 327
Philadelphia, PA 19125
Tax ID: 82-2521813
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