Philomena “Bean” Stendardo 2009 - 2017
In Bean’s honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research so that every child with DIPG has the chance to live a full life.
A child of God who possessed an innate ability to spread joy and touch the hearts of anyone she met. She was a one-of-a-kind, spunky little firecracker.
Committed to being the best at everything she did, especially in her role as little sister to her beloved brother, Marky.
A talented multi-sport athlete and brilliant scholar who loved going to school and playing with friends.
September 15, 2016
Philomena was diagnosed with DIPG at age seven. Her parents – Mark and Mina – explored every treatment available. They were shocked to discover that adult radiation, which would likely make symptoms worse by attacking rapidly growing cells, was her only option. The family prayed for a miracle and built a strong community of 20,000+ supporters by sharing Phil’s story.
July 23, 2017
Just 10 months after her diagnosis, Philomena lost her battle to this uniformly fatal disease. Phil was surrounded by family, friends and an online community of 20,000 loving supporters.
Join Our Community
In Bean’s honor, Storm the Heavens Fund is committed to spreading awareness and funding desperately needed research. We believe, with your help, we can fund a cure that will give every child diagnosed with DIPG the chance to live a full, healthy life. Every child has the right to grow up to be an adult.